Parents’ Informational Needs Following a Prenatal Diagnosis Of Fetal Anomaly: A Qualitative Study in The Iranian Context

Background: The availability of prenatal screening during the pregnancy has increased the detection rate of fetal anomalies. Useful information exchange between the healthcare provider and the family is an important component of coping with the stressful occurrence following a prenatal diagnosis of fetal anomaly. So, this study conducted to explore information Needs following a prenatal diagnosis of fetal anomaly. Method: This was done from the perspective of parents following a prenatal diagnosis of fetalanomaly. In a descriptive exploratory qualitative study, using a semi-structured interview and purposive sampling, a sample set of 16 pregnant women and 4 partners city were selected in order to elicit meaning behind their experiences about the subject under study, in Mashhad 2017. Data analysis was carried out using qualitative contentanalysis. Results: Results were used to identify a number of information that Parents need. This information included the following: (1) Information for making a decision; (2) Information for next step the near future; and (3) the adequacy ofinformation provided. There is a need for information on multiple subjects following the prenatal diagnosed anomalies, including the prognosis process, day-to-day management and the decisional process regarding the future of the pregnancy. Conclusion: Parents faced with a prenatal diagnosis of fetal anomaly present a big variety of information needs, which was not provided adequately by healthcare providers. The results of this study highlight the need for good communication based on health provider knowledge of how parents understand and experience of prenatal diagnosed anomalies  

کلیدواژه ها:

Parents ، Prenatal Diagnosis ، Fetal Anomaly ، Information Needs