Persian Registry Of cardioVascular diseasE (PROVE): Design and methodology

سال انتشار: 1396
نوع سند: مقاله ژورنالی
زبان: انگلیسی
مشاهده: 173

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شناسه ملی سند علمی:

JR_RYA-13-5_006

تاریخ نمایه سازی: 2 شهریور 1401

چکیده مقاله:

BACKGROUND: Our aim was to create and establish a database called “Persian Registry Of cardioVascular diseasE (PROVE)” in order to be used for future research and in addition, as a tool to develop national guidelines for diagnosis, treatment, and prevention of cardiovascular disease (CVD). In this paper, the design and methodology of the PROVE pilot study will be discussed, launched in Isfahan, Iran, in ۲۰۱۵-۲۰۱۶. METHODS: Through establishing PROVE, patients' data were collected from hospitals and outpatient clinics prospectively or retrospectively and followed up for a maximum of three years based on the type of CVDs. The inclusion criteria were as patients with acute coronary syndrome (ACS), ST elevation myocardial infarction (STEMI), stroke, atrial fibrillation (AF), heart failure (HF), congenital heart disease (CHD), percutaneous coronary intervention (PCI), and chronic ischemic cardiovascular disease (CICD). Specific protocols, questionnaires, and glossaries were developed for each registry. In order to ensure the validation of the protocols, questionnaires, data collection, management, and analysis, a well-established quality control (QC) protocol was developed and implemented. Data confidentiality was considered. RESULTS: In order to register patients with ACS, STEMI, stroke, HF, PCI, and CICD, the hospital recorded data were used, whereas, in case of AF and CHD registries, the data were collected from hospitals and outpatient clinics. During the pilot phase of the study in Isfahan, from March ۲۰۱۵ to September ۲۰۱۶, ۹۴۲۷ patients were registered as ACS including ۸۰۹ as STEMI, ۱۱۹۵ patients with HF, ۳۶۳ with AF, ۷۶۱ with stroke, ۱۱۳۶ with CHD, ۱۲۰۰ with PCI, and ۹ with CICD. Data collection and management were performed under the supervision of the QC group. CONCLUSION: PROVE was developed and implemented in Isfahan as a pilot study, in order to be implemented at national level in future. It provides a valuable source of valid data that could be used for future research, re-evaluation of current CVD management and more specifically, gap analysis and as a tool for assessment of the type of CVDs, prevention, treatment, and control by health care decision makers.   

نویسندگان

Mahshid Givi

Heart Failure Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Nizal Sarrafzadegan

Isfahan Cardiovascular Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Mohammad Garakyaraghi

Heart Failure Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Ghasem Yadegarfar

Heart Failure Research Center, Cardiovascular Research Institute AND Department of Epidemiology and Biostatic, School of Public Health, Isfahan University of Medical Sciences, Isfahan, Iran

Masoumeh Sadeghi

Cardiac Rehabilitation Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Alireza Khosravi

Hypertension Research Center AND Cardiac Intervention Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Amir Hossein Azhari

Heart Failure Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Mohammad Reza Samienasab

Isfahan Cardiovascular Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Davood Shafie

Heart Failure Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Mohammad Saadatnia

Isfahan Neurosciences Research Center, Isfahan University of Medical Sciences, Isfahan, Iran

Hamidreza Roohafza

Isfahan Cardiovascular Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences ,Isfahan, Iran

Navid Paydari

Isfahan Cardiovascular Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences ,Isfahan, Iran

Azam Soleimani

Cardiac Rehabilitation Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Mohsen Hosseinzadeh

Pediatric Cardiovascular Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Seyed Abdullah Ahmadi

Isfahan Cardiovascular Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Leila Dehghani

School of Advanced Technologies in Medicine, ShahidBeheshti University of Medical Sciences, Tehran, Iran

Jamshid Najafian

Isfahan Cardiovascular Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Elham Andalib

Isfahan Cardiovascular Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Javad Shahabi

Heart Failure Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

Mohammad Reza Sabri

Pediatric Cardiovascular Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran

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