Navigating Sexual Life After Spinal Cord Injury: A Qualitative Exploration of Challenges, Spousal Dynamics, and Societal Barriers

Objective: This study aimed to explore the sexual challenges faced by individuals with spinal cord injury (SCI) and their spouses in the Iranian socio-cultural context, where sexuality is often considered a taboo subject and remains under-discussed, especially in rehabilitation settings. Methods: This qualitative study used conventional content analysis and included ۲۵ participants (۱۵ women and ۵ men with SCI, ۳ spouses, and ۲ social workers) were selected through purposive and snowball sampling in Tehran, Iran. Data was collected via semi-structured in-depth interviews and analyzed using Lundman and Graneheim’s approach. Credibility, dependability, confirmability, and transferability were ensured to enhance the rigor of the findings. Results: The main theme that emerged was “Turbulent Sex Life,” comprising three main categories and thirteen subcategories. Key findings included emotional intimacy replacing physical intercourse, sexual dysfunction (e.g., erectile issues, loss of orgasm), insufficient sexual knowledge, passivity in sexual activity, and the use of alternative sexual behaviors. Spouses experienced emotional burden, unmet needs, and sometimes abandonment. Cultural taboos, economic pressures, and family interference amplified challenges. Children of individuals with SCI also faced psychological and social vulnerabilities due to stigma and familial tensions. Discussion: SCI profoundly disrupts sexual and emotional relationships, necessitating comprehensive rehabilitation that includes sexual health education, spousal support, and culturally sensitive counseling. Addressing these issues can improve quality of life for individuals with SCI and their families. Policy changes, family-centered interventions, and public education are essential to reduce stigma and foster inclusive support systems.

کلیدواژه ها:

Spinal cord injury ، Sexuality ، Qualitative study ، Partner relationships ، Cultural barriers