Ethical Challenges of Saving Extremely Premature Infants Using a Grounded Theory: Iranian Neonatologists’ Perception

سال انتشار: 1400
نوع سند: مقاله ژورنالی
زبان: انگلیسی
مشاهده: 238

فایل این مقاله در 11 صفحه با فرمت PDF قابل دریافت می باشد

استخراج به نرم افزارهای پژوهشی:

لینک ثابت به این مقاله:

شناسه ملی سند علمی:

JR_IRJN-12-2_011

تاریخ نمایه سازی: 18 اردیبهشت 1400

چکیده مقاله:

Background: Extremely premature infants are at greater risks of cognitive, behavioral, growth, and developmental problems, compared to the term infants. In addition to physical problems, these infants also incur a lot of emotional costs, stress, and financial burden to the family. This study aimed to explore ethical challenges and factors affecting decisions about initiation, sustain, and termination of the life of extremely premature infants that neonatologists face every day in the clinics. Methods: The present qualitative study was conducted based on a grounded theory. The participants were ۲۱ practitioners who were interviewed after giving consent and being briefed about the study. All interviews were recorded, transcribed, and then analyzed in this study. The data were then analyzed using Strauss-Corbin (۱۹۹۸) method in three phases of open, axial, and selective coding. Results: During analysis, ۱۴۲۰ initial (open) codes, ۱۹ subcategories, and two specific categories were obtained to explain the ethical challenges of decision-making on the sustaining or terminating the life of extremely premature infants. These categories included ۱) Independent decision-making of physicians, followed by two subcategories of "professional decision-making based on knowledge and clinical experience" and "uncertainty about the consequences of consulting with parents", and ۲) Improper conditions and facilities, followed by three subcategories of "lack of local scientific resources on medical ethics", "inefficient neonatal intensive care units", and "lack of efficient rules and guidelines". According to the obtained results, factors leading to ethical challenges included the lack of ethical and legal guidelines tailored to clinical conditions, lack of local scientific documentation in accordance with clinical conditions and health facilities available in the Neonatal Intensive Care Unit (NICU), conflicts between the current law on life preservation and moral guidelines, and lack of facilities, manpower, and equipment in the NICU. Conclusion: A physician’s decision is based on personal scientific and clinical experiences according to the conditions of the wards.

نویسندگان

- -

Medical Ethics Department, School of Traditional Medicine, Shahid Beheshti University of Medical Sciences, Tehran, Iran

- -

Medical Ethics, Medical Ethics Department, Medical School, Iran University of Medical Sciences, Tehran, Iran

مراجع و منابع این مقاله:

لیست زیر مراجع و منابع استفاده شده در این مقاله را نمایش می دهد. این مراجع به صورت کاملا ماشینی و بر اساس هوش مصنوعی استخراج شده اند و لذا ممکن است دارای اشکالاتی باشند که به مرور زمان دقت استخراج این محتوا افزایش می یابد. مراجعی که مقالات مربوط به آنها در سیویلیکا نمایه شده و پیدا شده اند، به خود مقاله لینک شده اند :
  • Blencowe H, Cousens S, Oestergaard MZ, Chou D, Moller AB, ...
  • Russell G, Sawyer A, Rabe H, Abbott J, Gyte G, ...
  • Wigert H, Johansson R, Berg M, Hellstrom AL. Mothers’ experiences ...
  • Davis L, Edwards H, Mohay H, Wollin J. The impact ...
  • Guillaume S, Michelin N, Amrani E, Benier B, Durrmeyer X, ...
  • Moro TT, Kavanaugh K, Savage TA, Reyes MR, Kimura RE, ...
  • Kynø NM, Ravn IH, Lindemann R, Smeby NA, Torgersen AM, ...
  • Hajjaj FM, Salek MS, Basra MK, Finlay AY. Non-clinical influences ...
  • 10. Coulter A, Parsons S, Askham J. Where are the ...
  • 11. Lipstein EA, Brinkman WB, Britto MT. What is known ...
  • 12. Butz AM, Walker JM, Pulsifer M, Winkelstein M. Shared ...
  • 13. Rylance G. Privacy, dignity, and confidentiality: interview study with ...
  • 14. Elger BS. Violations of medical confidentiality: opinions of primary ...
  • 15. Ozawa S, Walker DG. Comparison of trust in public ...
  • 16. Vrakking AM, van der Heide A, Arts WF, Pieters ...
  • 17. Papadimitriou V, Tosello B, Pfister R. Effect of written ...
  • 18. Dugdale DC, Epstein R, Pantilat SZ. Time and the ...
  • 19. Kitzinger J. Qualitative research. Introducing focus groups. BMJ. 1995; ...
  • 20. Kaaresen PI, Rønning JA, Tunby J, Nordhov SM, Ulvund ...
  • 21. Zigler EF. Handbook of early childhood intervention. Cambridge: Cambridge ...
  • 22. Olafsen KS, Kaaresen PI, Handegård BH, Ulvund SE, Dahl ...
  • 23. Fernandez A, Mondkar JA. Status of neonatal intensive care ...
  • 24. Jonsen AR, Siegler M, Winslade WJ. Clinical ethics: a ...
  • 25. Mullen PD, Reynolds R. The potential of grounded theory ...
  • 26. Tolley EE, Ulin PR, Mack N, Robinson ET, Succop ...
  • 28. Benbassat J, Pilpel D, Tidhar M. Patients' preferences for ...
  • 29. Tates K, Meeuwesen L. Doctor-parent-child communication. A (re)view of ...
  • 30. Palazzi DL, Lorin MI, Turner TL, Ward MA, Cabrera ...
  • 31. Moro TT, Kavanaugh K, Savage TA, Reyes MR, Kimura ...
  • 32. Meert KL, Thurston C, Sarnaik AP. Parental decisions regarding ...
  • 33. Brosig CL, Pierucci RL, Kupst MJ, Leuthner SR. Infant ...
  • 34. McHaffie HE, Laing IA, Parker M, McMillan J. Deciding ...
  • 35. Kavanaugh K, Savage T, Kilpatrick S, Kimura R, Hershberger ...
  • 36. Widger KA, Wilkins K. What are the key components ...
  • 37. Aburawi EH. Medical ethics in the developing world: time ...
  • 38. Rajput V, Bekes CE. Ethical issues in hospital medicine. ...
  • 39. Garg P, Bolisetty S. Neonatology in developed and developing ...
  • 40. Corchia C, Fanelli S, Gagliardi L, Bellù R, Zangrandi ...
  • نمایش کامل مراجع